National Organization for Rare Disorders
1779 Massachusetts Avenue Suite 500, Washington 20036
No matching record in Nevada's campaign-finance dataset
This client is registered with the Nevada Legislature as employing a lobbyist for the 83rd Session, but its name does not appear (yet) in the deduplicated NV Secretary of State campaign-finance dataset under this exact form. That can mean: it doesn't make political contributions in Nevada, it gives under a related entity name, it gives only at the federal level, or its name is recorded with different punctuation in the SOS dataset.
If you can identify the parent or affiliated entity, the SecureDrop on /tips is the safest channel.
Also lobbies the U.S. Congress
This client also appears in the U.S. Senate's Lobbying Disclosure Act (LDA) database — the public registry of lobbying activity directed at federal agencies and Congress, filed under the Lobbying Disclosure Act of 1995. Federal lobbying is a separate jurisdiction from Nevada state lobbying, but both flows from the same entity tell a fuller picture of how its political resources are deployed. 1 federal registrant on file, 1 federal filing matched.
| Federal registrant (lobbying firm) | Client name on federal filing | Filings |
|---|---|---|
| NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) | NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) | 1 |
Source: U.S. Senate Lobbying Disclosure Act Database. Matches are tokenwise high-confidence on entity name; LDA names occasionally differ from Nevada-registered names by formatting or affiliated subsidiary, so absence here is not proof of no federal lobbying.
Business-entity record on file
This client name matches one or more entities in the Nevada Secretary of State's business-entity registry. Type, status, formation date, registered agent, and active officers as filed with NVSOS. Useful for tracing parent/subsidiary relationships, beneficial owners, and shared registered agents across multiple lobbying clients.
THE NATIONAL ORGANIZATION FOR RARE DISORDERS, INC.
Foreign Nonprofit Corporation · Withdrawn · formed 2015-03-18 · NV-ID NV20151208980
Registered agent: CORPORATION SERVICE COMPANY*
4 active officers on file:
| Name | Role | Location |
|---|---|---|
| RONALD BARTEK | Director | DANBURY, CT |
| JOSEPHINE GRIMA | Secretary | DANBURY, CT |
| BRETT KOPELAN | Treasurer | DANBURY, CT |
| PETER SALTONSTALL | President | DANBURY, CT |
THE NATIONAL ORGANIZATION FOR RARE DISORDERS, INC.
Foreign Nonprofit Corporation · Permanently Revoked · formed 1997-07-02 · NV-ID NV19971211223
Registered agent: C T CORPORATION SYSTEM**
4 active officers on file:
| Name | Role | Location |
|---|---|---|
| JAYNE GERSHKOWITZ | Director | BRIGHTON, MA |
| JOYCE WILCOX GRAFF | Secretary | BROOKLINE, MA |
| ABBEY MEYERS | President | DANBURY, CT |
| KIMBERLY SYMONDS | Treasurer | WOOSTER, OH |
Source: Nevada Secretary of State, nvsos_corporations + nvsos_corporation_officers + nvsos_resident_agents. Tokenwise high-confidence name match. Inactive / terminated / resigned officers are filtered out.
Registered for the 83rd (2025) Session
These lobbyists named this client as an employer when registering with the Nevada Legislature.
Know more about this entity?
Parent companies, beneficial owners, related entities, undisclosed ties — if you have records, send them via the SecureDrop on Nevada Whistleblowers.